Decisions

Its been a tough week for the parental unit here in New Haven. Leigh´s doctors have been pushing for a tracheostomy to replace the nasal CPAP - she´s not growing enough and spending too much energy breathing. This will mean 24 hour home nursing care, a ventilator in her bedroom and one downstairs, portable suction devices . . . for 12-24 months. It also means that we can push for her to come home on a definite timetable (once we are trained in her care) and that she can start growing and learning how to eat. So, we were sad, but now we´re excited to get things going. The operation is tenatively scheduled for Friday; one week after that is her first trach change; the fastest a baby has gone home after that is 8 weeks. That´s our goal.